Graeme Souness has launched a fundraiser for a cure for ‘butterfly skin’. That’s why people online want to know about Graeme Souness’ battle with epidermolysis bullosa.
Former professional footballer, manager and television analyst Graeme James Souness hails from Scotland.
Souness was a successful midfielder for Liverpool in the early 1980s and was a player-manager for Rangers in the late 20th century.
He also captained the Scottish national team, playing for Sampdoria, Middlesbrough and Tottenham Hotspur.
Before joining Liverpool, Souness began his managerial career with Rangers, where he helped them win four League Cups and three Scottish titles.
He then managed Newcastle United, Galatasaray, Southampton, Turin, Benfica and Blackburn Rovers.
Graeme Souness battles epidermolysis bullosa: football star swims across the English Channel
Football star Graeme Souness will swim across the English Channel to help people with a rare skin condition.
Holding back tears, the former Scotland, Liverpool and Rangers star described epidermolysis bullosa as “the most brutal disease in the world”.
A meeting with Ira Grist from the Scottish Highlands inspired him to take on the 16-hour challenge.
A 14-year-old boy suffers from “butterfly skin,” which tears and blister when touched.
Holding back tears, the 70-year-old former coach and player called Islay “the most unique person I’ve ever met.”
“She does that to me all the time,” he told BBC Breakfast. Even in her old age, she still inspires me.
The former TV commentator wants to raise £1.1m for the Debra charity which aims to help 5,000 Britons currently living with Ella and the genetic disease.
There is no cure, but the mild version may improve with age.
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No, Sky Sports commentator Graham is not sick as of 2023. However, he announced plans to swim across the English Channel to raise money for DERBA.
DERBA is a charity that helps people with epidermolysis bullosa (also known as butterfly dermatosis).
Souness supported the organization after meeting Ira Grist, a 14-year-old girl with recessive dystrophic epidermolysis bullosa.
“I have seen firsthand the excruciating pain this devastating situation causes and the daily hardships it brings, from my time with Ella and her family,” she added.
He will now swim the 34 miles between Dover and Calais with a team of six, including Ella’s father Andy, which could take up to 16 hours.
“This is without a doubt the most difficult task I have ever undertaken, but I am determined to finish it,” Souness said.
With the help of Ella’s father, Andy, and the rest of the team, we complete the challenge of raising money and support to find a much-needed cure.
In a moving interview on the BBC’s breakfast show, Souness called Grist an “inspiration” and praised her bravery.
“It hit me right in the nose,” he said, when he first saw the pain. “This disease is the cruelest and most vicious disease I have ever encountered.
She has shown such courage at such a young age and is a true hero.
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What exactly is EB (epidermolysis bullosa)?
Severe hereditary bullous skin disorder (EB) is also known as ‘butterfly skin’.
In severe cases, it can affect any part of the body, the eyes, internal organs, and can cause blisters and skin tears on the hands and feet.
It is classified by the NHS as an autoimmune disease because it causes the immune system to attack healthy body tissues.
Although very rare, it usually affects people over the age of 40.
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